Gordon and Betty Moore Foundation
The Gordon and Betty Moore Foundation was established in 2000 to create positive outcomes for future generations around the world. The Foundation believes in bold ideas that create enduring impact in the areas of environmental conservation, science and patient care. The Foundation’s Patient Care Program focuses on eliminating preventable harms and unnecessary healthcare costs by meaningfully engaging patients and families in a redesigned, supportive healthcare system. The Moore Foundation funded development of the Roadmap for Patient and Family Engagement in Healthcare Practice and Research under the direction of Dr. Dominick Frosch and Ms. Susan Baade.
American Institutes for Research
Founded in 1946 as a not-for-profit organization, the American Institutes for Research (AIR) is one of the world’s largest behavioral and social science research and evaluation organizations. Our overriding goal is to use the best science available to bring the most effective ideas and approaches to enhancing everyday life. AIR’s Health and Social Development program addresses overall health and healthcare issues, specializing in research and evaluation, training and technical assistance, and communication and social marketing to improve access, delivery, experiences of care, cost effectiveness, and outcomes. As a commitment to the importance of engagement in healthcare, AIR created the Center for Patient & Consumer Engagement to advance the knowledge and practice of consumer engagement, with the goals of providing resources, sharing knowledge, and creating a virtual community for learning.
The Gordon and Betty Moore Foundation engaged AIR to convene a diverse group of stakeholders and forge a unified vision—a roadmap—for achieving meaningful patient and family engagement across the U.S. healthcare system. This work was led for AIR by Dr. Kristin Carman, Ms. Pam Dardess, Ms. Maureen Maurer, and Dr. Tom Workman with contributions from many others.